My 15yr old son was diagnosed with AS last July2018, shocked us all,felt so afraid, a lot of whys, been crying day & night, been a loner since then.
So many things started to change, our way of living, food that we eat & our attitude as well. I love my son so so much that I can feel his pain, his worries, but we know we have to embrace the fact that he is not like what he used to be before. He loves basketball all his life, but with this he cannot do so due to his condition. Sometimes in quiet moments, I was like, why my son, he's so young & just starting to discover & experience life. I cried a lot but i know no way it will help. I used to ask myself, yeah we have problem, hoping it is just money that we worry, why does it have to be my son's health at stake. One thing is realized, life is not about any material thing, the most important thing is our faith & our health. Cost of medication is so high that makes us so worried how to deal with it. God is so good, He showed us & we found ways. For now we continue with the medication with the help of some good people, but my worry is for how long are we going to survive? His condition is lifetime as well as his medication. But why worry, I know I have a big God & he will not forsake me. I prayed that my son will get better & that he lives a normal life just like any other kid. I also prayed for the strength & wisdom that life is not bad at all & we will survive with the help of our living God. Today will be his 2nd biologic treatment injection, I prayed for his betterment & God please help us all.

Grieving mother